Thursday, 18 October 2012

Tim and Lois's Travels October 2012

Tim and Lois, my brother and sister-in-law, have been on their travels again.  I have inserted below a number of their photos which I hope you will enjoy.

Santorini, Greece

Haifa, Israel

Haifa, Israel
Jerusalem, Israel

Jerusalem, Israel

Jerusalem, Israel
Tower of David Museum, Jerusalem, Israel

The Wailing Wall, Jerusalem, Israel
Port of Alexandria, Egypt
Ruins at Pompeii, Italy
Ruins at Pompeii, Italy
Ruins at Pompeii, Italy 

Ruins at Pompeii, Italy

Mount Vesuvius, Italy

Wednesday, 10 October 2012

European ME Alliance Petition to the European Parliament 2012

The members of the European ME Alliance have put forward a petition to the European Parliament in Brussels. EMEA feel there is an urgent requirement to address the perception, treatment and research into myalgic encephalomyelitis.

Letters have been sent to all of the Alliance's members of the European Parliament –

Dear Members of the European Parliament,

The European ME Alliance (EMEA) is a grouping of European organisations that are involved in supporting patients suffering from myalgic encephalomyelitis (ME) - (in some countries ME is embraced in the term ME/CFS or even CFS) and the Alliance campaigns for a strategy of biomedical research into ME in order to provide treatments and cures for this neurological disease.

The Alliance consists of member organisations from Belgium, Germany, Holland, Ireland, Italy, Norway, Spain, Sweden, Switzerland, Denmark and UK.

The representatives of the European ME Alliance wish to ask for your support of the attached petition. The petition seeks to ensure that member states of the EU abide by, enforce and respect the following: -

- that myalgic encephalomyelitis is treated as a neurological disease
- the medical and civil rights of people suffering from ME are respected
- the most recent criteria for diagnosis of ME are used by member states
- biomedical research on ME is fostered and funded by the EU
- discrimination against people with ME is stopped

EMEA Belgium will represent the Alliance in any discussions with the EU that are held in Brussels.

We hope we can count on your support for this petition.

Yours Sincerely,

The Chairman, Board and Members of the European ME Alliance

European ME Alliance

Belgium - ME/CFS Association
Denmark - Dansk ME Forening
Ireland - Irish ME Trust
Italy - Associazione Malati di CFS
Germany - Fatigatio e.V.
Netherlands - Het Alternatief
Norway - Norges M.E. Forening
Spain - Liga SFC
Sweden - Riksföreningen för ME-patienter
Switzerland - Verein CFS Schweiz
UK - Invest in ME


The legal and medical situation of ME (Myalgic Encephalomyelitis) and CFS (Chronic Fatigue Syndrome) patients

Myalgic Encephalomyelitis (ME) was accepted by the WHO as a neurological disease in 1969.

In some countries ME is referred to as Chronic Fatigue Syndrome (CFS). In 1993 CFS was added as an addendum to ICD-10 but the “fatigue”-based definition of CFS still causes confusion and problems for patients, as was stated by Mrs. Androulla Vassiliou, former European Health Commissioner.

ME can occur in outbreaks: one was described for the first time in 1934.

Experts have placed ME in the same category as cancer and late stage AIDS regarding quality of life and suffering.

We therefore request the following:

- to respect the WHO ICD-10-Code G93.3 for ME as a neurological disease and ensure that the Member States implement this in their Health Care System;
- to respect the rights of ME patients – including children - in all Member States;
- to endorse as diagnostic criteria for ME the Canadian Consensus Criteria and the developing International Consensus Criteria;
- to encourage the development of biomedical research.

An estimated 1,200,000 very sick ME patients in Europe are waiting for parliament to recognise the WHO ICD-10-Code G93.3.


G93.3 Postviral fatigue syndrome
            Benign myalgic encephalomyelitis (ME)
2. Carruthers B, Jain AK, De Meirleir KL, Peterson DL, Klimas NG, Lerner AM, Bested AC, Flor-Henry P, Joshi P, Powles AP, et al.: Myalgic encephalomyelitis/chronic fatigue syndrome: clinical working case definition, diagnostic and treatment protocols. Journal of chronic fatigue syndrome 2003, 11(1):7-115.
3. Carruthers BM, van de Sande MI, De Meirleir KL, Klimas NG, Broderick G, Mitchell T et al. Myalgic encephalomyelitis: International Consensus Criteria. J Intern Med 2011;270:327–38.
4. Nacul LC, Lacerda EM, Campion P, Pheby D, Drachler MD, Leite JC, Poland F, Howe A, Fayyaz S, Molokhia M: The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers. BMC Public Health 2011, 11(1):402.
5. J. Mark Van Ness, Staci R. Stevens, Kylie T. Kumasaka, Harnoor Singh, Betsy Keller, Daniel L. Peterson, Jose Montoya and Christopher R. Snell: A diagnostic test for the identification of metabolic dysfunction. Conference abstract 9th IACFS/ME clinical and research conference, Reno, March 7, 2009.
6. Brown, M. M., Bell, D. S., Jason, L. A., Christos, C. and Bell, D. E. (2012), Understanding Long-Term Outcomes of Chronic Fatigue Syndrome. J. Clin. Psychol., 68: 1028–1035. doi: 10.1002/jclp.21880
7. Twisk, F.N., Maes, M., 2009. A review on cognitive behavioral therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME)/ chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful for many patients with ME/CFS. Neuro Endocrinology Letters 30 (3), 284–299.
8. KCE report: Evaluation of CBT/GET therapy.
9. Fluge Ø, Bruland O, Risa K, Storstein A, Kristoffersen EK, et al. (2011) Benefit from B-Lymphocyte Depletion Using the Anti-CD20 Antibody Rituximab in Chronic Fatigue Syndrome. A Double-Blind and Placebo-Controlled Study. PLoS ONE 6(10): e26358. doi:10.1371/journal.pone.0026358
10. Maes M, Twisk FN: Chronic fatigue syndrome: Harvey and Wessely's (bio)psychosocial model versus a bio(psychosocial) model based on inflammatory and oxidative and nitrosative stress pathways. BMC Med 8:35.
11. Broderick G, Fuite J, Kreitz A, Vernon SD, Klimas N, Fletcher MA. A formal analysis of cytokine networks in chronic fatigue syndrome. Brain Behav Immun. 2010 Oct;24(7):1209-17.
12. Komaroff AL, Cho TA: Role of infection and neurologic dysfunction in chronic fatigue syndrome. Seminars in Neurology 2011, in press.

For further information

1. Klimas NG, Salvato FR, Morgan R, Fletcher MA. Immunologic abnormalities in chronic fatigue syndrome. J Clin Microbiol 1990; 28: 1403-10. [PMID: 2166084]
2. Myhill S, Booth NE, McLaren-Howard J. Chronic fatigue syndrome and mitochondrial dysfunction. Int J Clin Exp Med 2009; 2: 1-16. [PMID: 19436827]
3. Peckerman, A., LaManca, J.J., Dahl, K.A., Chemitiganti, R., Qureishi, B., Natelson, B.H., 2003. Abnormal impedance cardiography predicts symptom severity in chronic fatigue syndrome. American Journal of Medical Sciences 326 (2), 55–60.
4. Streeten DH, Thomas D, Bell DS. The roles of orthostatic hypotension, orthostatic tachycardia and subnormal erythrocyte volume in the pathogenesis of the chronic fatigue syndrome. Am J Med 2000; 320: 1-8. [PMID: 10910366]
5. Kerr JR, Burke B, Petty R, et al. Seven genomic subtypes of chronic fatigue syndrome/myalgic encephalomyelitis; a detailed analysis of gene network and clinical phenotypes. J Clin Pathol 2008; 61: 730-739. [PMID: 18057078]
6. Tirelli U, Chierichetti F, Tavio M, Simonelli C, Bianchin G, Zanco P, Ferlin G. Brain positron emission tomography (PET) in chronic fatigue syndrome: preliminary data. Amer J Med 1998; 105: 54S-8S. [PMID: 9790483]
7. Goldstein JA. Chronic Fatigue Syndrome: The Limbic Hypothesis. Binghamptom, New York: Haworth Medical Press; 1993:19, 116.
8. Chia J, Chia A, Voeller M, Lee T, Chang R. Acute enterovirus infection followed by myalgic encephalomyelitis/chronic fatigue syndrome and viral persistence. J Clin Pathol 2010; 63: 163-8. [PMID: 19828908]
9. Pall ML. Explaining “Unexplained Illnesses”: Disease Paradigm for Chronic Fatigue Syndrome, Multiple Chemical Sensitivity, Fibromyalgia, Post-Traumatic Stress Disorder, Gulf War Syndrome and Others. Bighamton, NY: Harrington Park (Haworth) Press, 2007.
10. Meeus M, Nijs J, McGregor N, Meeusen R, De Schutter G, Truijen S, Frémont M, Van Hoof E, De Meirleir K.: Unravelling intracellular immune dysfunctions in chronic fatigue syndrome: interactions between protein kinase R activity, RNase L cleavage and elastase activity, and their clinical relevance. In Vivo. 2008 Jan-Feb;22(1):115-21.PMID:18396793 [PubMed - indexed for MEDLINE]

For an objective view of the establishment intrigue surrounding ME we recommend:

Magical Medicine: How to Make a Disease Disappear by Professor Malcolm Hooper [click here]

Professor Hooper has made a formal complaint to the Minister of State responsible for the Medical Research Council.

Wednesday, 3 October 2012

All The Bible!

Terry J Blackman

I read the Bible little, and so little did I read:
Much of the precious Scripture was unknown to me indeed.
I liked the shepherd Psalm and loved Isaiah fifty-three,
And the fifteenth of Corinthians, though long, it seemed to me;
But often made excuses: much too busy, or, too tired,
And thus despised the Holy Book by God Himself inspired.
But then a thought occurred to me, a thought divine I’m sure:
To read the whole of God’s good Word, and not think this a chore.
And as I read it more and more, what joy did it afford,
To read and feed on every word as spoken by the Lord.
The Bible! all the Bible! Yes, each jot and tittle there:
By grace I’ll read and learn it all, with reverence and prayer.

Oh Book of heavenly wisdom, full of power and majesty!
An endless source of treasure, and a lens by which I see
The glory of the Saviour, all the vileness of sin,
The meaning of affliction, and the joy of truth within.
When reading of the saints and godly patriarchs of old;
The holy Tent, the Temple, full of glory, rich in gold;
Of God’s ways with the people of the chosen Hebrew line,
Of visions so amazing, of great mysteries divine:
In every part I find the Spirit’s message is all one -
Revealing the Messiah, our Redeemer, God’s dear Son.
The Bible! all the Bible! Yes, each jot and tittle there:
By grace I’ll read it, every word, with reverence and prayer.

Now first the books of Moses open up their plenteous stores,
And show to us our origin, with types and righteous laws.
In Joshua comes the conquest of the promised land of rest,
The war and strife of Judges, and then Ruth - how sweet and blessed!
The books of Samuel give the reigns of Saul and Jesse’s son;
The First of Kings: the peaceful times of prudent Solomon.
Then reading on in Kings we find that some kings were quite just,
While others did no good, for molten idols were their trust.
The Chronicles begin anew with Adam, the first man,
And trace the sacred history till captivity began.
The Bible! all the Bible! Yes, each jot and tittle there:
By grace I’ll read it, day by day, with reverence and prayer.

In Ezra and Nehemiah the holy city is reclaimed,
While Esther shows God’s ceaseless care, although He is not named.
In Job we see God’s will is best e’en in the darkest days,
The Psalms are full of heartfelt prayer and joyful songs of praise.
Then Proverbs and Ecclesiastes godly fear impart,
And Song of Songs reveals the love which fills our Bridegroom’s heart.
Isaiah, Jeremiah and Ezekiel, Daniel too,
And twelve more “Minor Prophets”, show the great things God will do,
And speak of the Messiah divine, of Whom we’ll read much more
In those New Covenant Scriptures which await us on before:
The Bible! all the Bible! Yes, each jot and tittle there:
By grace I’ll read it carefully, with reverence and prayer.

Four Gospels tell our hearts about our Saviour Jesus Christ,
One Who was perfect, and in love for us was sacrificed;
How, risen and ascended now, He still is just the same,
And says to all His followers, “Go forth: My word proclaim”!
In Acts the apostolic band their Master’s Word make known,
And meet with love the hatred which so oft to them is shown.
The Epistles then so richly God’s most precious thoughts display,
To expound the Christian teaching, and to guide the Christian’s way.
The Revelation then concludes the wondrous Book of God:
Christ, glorified in heaven and earth, rules nations with a rod.
The Bible! all the Bible! Yes, each jot and tittle there:
By grace I’ll read it o’er again, with reverence and prayer.

Oh my dear fellow-Christian, please allow me to say this,
With earnestness, entreaties, and with holy emphasis:
Don’t just read favourite portions, for it is the Word of God,
And we’re His much loved children, all redeemed with precious blood.
This Book is from our Father, God, its theme is His dear Son,
And by the Spirit every word’s inspired, yes, every one.
Oh you, who know and love the truth, God’s words do not neglect:
From every part, yes every part, a blessing true expect.
So give much time to God’s dear Book, (your mind for this was made),
Your life will be more holy, and your heart no more afraid.
The Bible! all the Bible! Yes, each jot and tittle there:
Oh let us read it, through and through, with reverence and prayer!

Taken from the Bible League Quarterly Magazine, October - December 2012, Issue 451.

Used with kind permission of the author.