Saturday, 19 March 2011

Mother describes son’s anguish with ME

Please listen to the audio clip on the above website. The things described in the clip – being told you have depression, locking people up in mental health wards – are still happening to ME patients. They would never dare to do such things to people with other neurological conditions such as MS and MND.

Incidentally, the mother mentions that the tests done on her son came back negative; that is almost certainly because they are doing the wrong tests! There are plenty of tests that do show up problems in ME – I have a folder full of abnormal test results!

For a list of some of the abnormalities that have been demonstrated in people with ME please see the following by Eileen Marshall and Margaret Williams -

From the BBC web page mentioned above -

16 March 2011

Diana Newcombe's 20-year-old son Oliver went from being a fit and active student to becoming bed-bound and unable to speak after having the flu in 2009.

Myalgic encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is characterised by prolonged fatigue associated with symptoms such as muscle pain, headaches and sore joints.

The NHS watchdog NICE has produced guidelines on how to treat it, but some argue that it often still goes undetected.

Speaking to the BBC, Mrs Newcombe says Oliver was initially told he had depression.

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