Thursday, 27 January 2011

Response from Professor Malcolm Hooper to Dr Frances Rawle at the Medical Research Council

To read the letter sent by Prof Hooper on 26 January 2011 regarding the complaint about the MRC PACE Trial, click on -

Thursday, 20 January 2011

MRC Response

From Margaret Williams

A response to Professor Hooper's complaint about the MRC PACE Trial has just been received from Frances Rawle, PhD, Head of Corporate Governance and Policy.

It is a five page letter and concludes:
"I believe that none of your complaints can be upheld, and that your concerns are groundless and without substance. We will therefore be taking no further action in this regard".

The whole letter will be scanned and made public in due course.

(For further details of Professor Hooper's complaint, please see, and in particular the document "Magical Medicine: How to make a disease disappear" (6mb) online at

Tuesday, 11 January 2011

A REMINDER - Lost Voices

The following is by Gurli Bagnall

Some months ago I was given a copy of:

Lost Voices: from a hidden illness

The book is beautifully presented and was collated and published by Invest in ME.

I was so impressed, I acquired two more copies and gave one to the local MS Society since they recognize ME as neurological disease.

I keep the second copy on a table for visitors to look through and also to lend to those who wish to read it.

The third, I guard jealousy for this is MY copy.

I raise the issue now because it is clear that even with the discoveries made during the course of the last couple of years, we cannot afford to relax.

We still need to remind the public that this is a serious disease which causes utter devastation in the lives of its victims and their families.

Copies of this high quality production can still be obtained from:

Invest in ME in the UK (order form)

Telephone: 02380 251719 or 07759 349743

And in Australia from:

The Alison Hunter Memorial Foundation: (Book Order)

Contact Christine Hunter on:

Telephone and fax: +61 2 9958 6285

Friday, 7 January 2011

Dr Myhill: GMC removes suspension!

From the Support Dr Myhill website -

6th January 2011

In a stunning turn around at the IOP Hearing today, the GMC has restored Dr Myhill's licence to practise, including the right to prescribe, but have imposed conditions which are largely cosmetic and procedural.

Dr Myhill will now be able to practice again as a doctor.

For the first time the GMC has acknowledged the substantial support from colleagues and members of the public and has accepted that no patient has been harmed or put at risk.

The GMC determination was received late this evening and Sarah wishes to consider it at length in the morning. The transcript is now available and can be downloaded here.

Well done everyone and thank you for all your help and support!

Saturday, 1 January 2011

Happy New Year!

Just a quick note to wish a very Happy New Year to everyone out there. How good it is to know that, amidst all the uncertainties of life, we have an unchanging God Who loves His people with an everlasting love (Jeremiah 31 v 3).

"For our conversation is in heaven; from whence also we look for the Saviour, the Lord Jesus Christ" (Philippians 3 v 20).

C H Spurgeon's Morning Devotional for 1st January -

"They did eat of the fruit of the land of Canaan that year"

Joshua 5 v 12

Israel’s weary wanderings were all over, and the promised rest was attained. No more moving tents, fiery serpents, fierce Amalekites, and howling wildernesses: they came to the land which flowed with milk and honey, and they ate the old corn of the land. Perhaps this year, beloved Christian reader, this may be thy case or mine. Joyful is the prospect, and if faith be in active exercise, it will yield unalloyed delight. To be with Jesus in the rest which remaineth for the people of God, is a cheering hope indeed, and to expect this glory so soon is a double bliss. Unbelief shudders at the Jordan which still rolls between us and the goodly land, but let us rest assured that we have already experienced more ills than death at its worst can cause us. Let us banish every fearful thought, and rejoice with exceeding great joy, in the prospect that this year we shall begin to be “forever with the Lord.”

A part of the host will this year tarry on earth, to do service for their Lord. If this should fall to our lot, there is no reason why the New Year’s text should not still be true. “We who have believed do enter into rest.” The Holy Spirit is the earnest of our inheritance; he gives us “glory begun below.” In heaven they are secure, and so are we preserved in Christ Jesus; there they triumph over their enemies, and we have victories too. Celestial spirits enjoy communion with their Lord, and this is not denied to us; they rest in his love, and we have perfect peace in him: they hymn his praise, and it is our privilege to bless him too. We will this year gather celestial fruits on earthly ground, where faith and hope have made the desert like the garden of the Lord. Man did eat angels’ food of old, and why not now? O for grace to feed on Jesus, and so to eat of the fruit of the land of Canaan this year!