Monday, 15 November 2010

UK 'CFS/ME' PACE Trial Complaint Update

Professor Malcolm Hooper has received a letter dated 8 November 2010 from the Minister with responsibility for the MRC, The Rt Hon David Willetts MP.

He notes that the MRC is "thoroughly" investigating the complaint that was set out in "Magical Medicine: how to make a disease disappear" and awaits the promised response with interest" -

Dear Doctor Hooper,

Thank you for your letter of 7 October to the Secretary of State, regarding your complaint about the Medical Research Council (MRC) funded PACE trial on CFS/ME. I am replying as this matter falls within my portfolio and apologise for the delay in doing so.

I do recognise that CFS/ME can be an extremely debilitating illness and cause much distress to sufferers and their carers. The MRC, as one of the Government's main funding agencies for biomedical research, also recognises this and welcomes high quality applications for research into CFS/ME including evaluations of treatments, and studies into the biological basis of the condition.

You have taken the correct course of action in raising your concerns with the MRC; the council has assured me that it takes allegations of coercion within a trial very seriously and is investigating your complaint thoroughly. I have been assured that you will receive a response from the MRC within the next month.

Yours sincerely,

The Rt Hon David Willetts MP

A copy of the letter from David Willets to Professor Hooper is available for download as a pdf at:

If you haven't read "Magical Medicine: How to make a disease disappear", it can be found at:

For further information, see also:

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