Dr Charles Shepherd, Hon. Medical
Adviser, ME Association.
We are very pleased to announce
that Professor Derek Pheby has accepted our invitation to become a Patron of
the ME Association.
Derek has had a long and
distinguished career and has a key interest in M.E., in particular through his
work in helping to set up the ME Biobank, research into the epidemiology of
M.E., and his constant willingness to provide help and support to the charity
His initial interest in M.E. was
triggered because a family member was diagnosed with the illness.
Throughout his career, Derek has
maintained close contact with the ME Association, and we hope this new
appointment will continue to benefit both the charity and the patient
We are very grateful to all our
patrons for supporting the work of the ME Association: HRH The Duke of Kent KG
GCMG KCVO, Etain, Lady Hagart-Alexander, The Countess of Mar, John Rutter CBE,
and, Professor Derek Pheby.
Professor Pheby has provided a
summary of his biography that you might like to read:
* I studied medicine at St.
Thomas’s Hospital Medical School, in the University of London, and I am a graduate
in science and medicine, with higher degrees in social policy and law.
* More than forty years ago, I
was a general practitioner in rural North Yorkshire, but my more recent career
has largely been in medical research and research management, mostly in
Bristol, at the University of Bristol. I am an epidemiologist, and a specialist
in public health.
* I was awarded a Haldane Award
by the Royal Institute of Public Administration in 1983 for work on child
* From 2009 to 2014, I was a
member of the General Medical Council’s Reference Community, which advised the
GMC on policy and strategy issues.
* From 1989-1994 I was Clinical
Coordinator for the development of the Medical Data Index IT system, to support
clinical work in the South-Western region.
* I have initiated effective
national and international collaborations in cancer care and research, and in
ME/CFS, liaising effectively with agencies and institutions across Europe.
* I was Director of the
South-West Regional Cancer Registry in the early 1990s, and joint founder and
first chairman of the UK Association of Cancer Registries.
* I was UK representative on the
Permanent Steering Committee of the European Network of Cancer Registries, and
chairman of its data definitions group.
* I was formerly Chair of the
Project Assurance Team for all the projects undertaken by the NHS Centre for
Coding and Classification, which led in turn to the development of
* I was a member, successively,
of the National Task Force on ME/CFS, the Chief Medical Officer’s Working Group
on ME/CFS, and the MRC Expert Group on ME/CFS.
* I have received around twenty
research grants, culminating in a grant of £503,028 from the Big Lottery Fund
in 2006 to set up a National Observatory for ME/CFS. This project ran for three
years and was the launch pad both for the UK ME Biobank and for EUROMENE (the
European ME/CFS Research Network).
* I was the principal
investigator and project coordinator, of the National ME Observatory. The
purpose was to address inadequacies in the research evidence base, to establish
a strategic approach to research in this area, and to develop an infrastructure
to support future research. Funded by the Big Lottery Fund via their largest
grant for medical research to date, the project involved collaboration between
ME charities, the London School of Hygiene and Tropical Medicine, the
University of Hull, and the University of East Anglia.
* I was appointed Visiting
Professor of Epidemiology at Buckinghamshire New University in 2009.
* I was scientific coordinator of
EUROMENE until 2014, when I had to relinquish this role because of cancer, but
I remain chair of Working Group 3 – socio-economics (one of six working groups
in the current EU-funded project), as well as representing the UK on the
* In 2017, I was awarded the
Silver Medal of the European Society for Person-Centred Healthcare.
* I have authored around ninety
peer-reviewed scientific publications, as well as numerous articles in the lay
press), public presentations to audiences ranging from local self-help groups
to national and international conferences, and numerous radio and television