Thursday, 24 March 2011

Neuro-Immune Disease - Advocates 4 Answers

http://www.wpinstitute.org/news/docs/Advocates4Answers.pdf

From the Whittemore Peterson Institute for Neuro-Immune Disease

March 23, 2011

Dear Neuro-Immune Disease Advocate,

WPI invites you to join together in a global awareness month for Neuro-Immune Disease beginning May 1, 2011.

Your participation in a variety of activities can help bring worldwide awareness of debilitating acquired diseases that impact the lives of millions around the world.

Help us deliver the global message that it is time to fund the critical search for answers.

Join the movement by visiting us at: http://www.anida.co/ and sign the official guestbook starting April 1.

Your support is critical and we thank you for it.

Annette Whittemore

President, Whittemore Peterson Institute

Email us for more information at info@anida.co

"Advocates 4 Answers

Neuro-immune diseases such as M.E., CFS, fibromyalgia, autism, chronic Lyme disease, and Gulf War illness have no FDA approved bio-markers or treatments for the underlying causes of disease.

Saturday, 19 March 2011

Mother describes son’s anguish with ME

http://www.bbc.co.uk/news/health-12764433

Please listen to the audio clip on the above website. The things described in the clip – being told you have depression, locking people up in mental health wards – are still happening to ME patients. They would never dare to do such things to people with other neurological conditions such as MS and MND.

Incidentally, the mother mentions that the tests done on her son came back negative; that is almost certainly because they are doing the wrong tests! There are plenty of tests that do show up problems in ME – I have a folder full of abnormal test results!

For a list of some of the abnormalities that have been demonstrated in people with ME please see the following by Eileen Marshall and Margaret Williams -
http://www.meactionuk.org.uk/MECFS_peer-reviewed_research_data.htm

From the BBC web page mentioned above -

16 March 2011


Diana Newcombe's 20-year-old son Oliver went from being a fit and active student to becoming bed-bound and unable to speak after having the flu in 2009.

Myalgic encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is characterised by prolonged fatigue associated with symptoms such as muscle pain, headaches and sore joints.

The NHS watchdog NICE has produced guidelines on how to treat it, but some argue that it often still goes undetected.

Speaking to the BBC, Mrs Newcombe says Oliver was initially told he had depression.



Saturday, 12 March 2011

6th Invest in ME Conference

The Invest in ME Conference this year has as it’s theme “The Way Forward For ME – A Case For Clinical Trials For ME/CFS”, including the latest advances in ME/CFS research and treatments. Speakers, most of whose names are well known in ME circles, include Dr David Bell, Dr John Chia, Prof Kenny De Meirlier, Dr Judy Mikovits, and Annette Whittemore, with Prof Malcolm Hooper as conference chairman. It is CPD accredited and will take place in London on 20th May.

For further details please see -
http://www.investinme.org/Documents/MECFS%20Conference%202011/IiME%20MECFS%20Conference%202011%20Flyer.pdf



Friday, 4 March 2011

The End Of The Way

This poem was in the “Gospel Standard” back in 1886. It has been republished occasionally since then and was in the March 2006 edition of the Gospel Standard Magazine – see the page 96 of the following PDF file -
http://www.gospelstandard.org.uk/files/2006.pdf

The poem is posted here with kind permission of the Gospel Standard Trust.

The following beautiful lines were written by a young woman in Nova Scotia, an invalid for many years with spinal disease, and a great sufferer, but in whom the grace of God was most wonderfully manifested.


The End Of The Way

My life is a wearisome journey,
I'm sick with the dust and the heat,
The rays of the sun beat upon me,
The briars are wounding my feet;
But the city to which I am journeying
Will more than my trials repay,
All the toils of the road will seem nothing
When I get to the end of the way.

There are so many hills to climb upwards,
I often am longing for rest,
But He who appoints me my pathway
Knows just what is needful and best;
I know in His Word He has promised
That my strength shall be as my day,
And the toils of the road will seem nothing
When I get to the end of the way.

He loves me too well to forsake me,
Or give me one trial too much;
All His people have been dearly purchased,
And Satan can never claim such.
By and by I shall see Him and praise Him
In the city of unending day,
And the toils of the road will seem nothing
When I get to the end of the way.

When the last feeble step has been taken,
And the gates of the city appear,
And the beautiful songs of the angels
Float out on my listening ear;
When all that now seems so mysterious
Will be plain and clear as the day
Yes, the toils of the road will seem nothing
When I get to the end of the way.

Though now I am footsore and weary,
I shall rest when I'm safely at home;
I know I'll receive a glad welcome,
For the Saviour Himself has said, "Come!"
So when I am weary in body
And sinking in spirit, I say,
"All the toils of the road will seem nothing
When I get to the end of the way."

Anonymous


The End Of The Way is also available on the Banner Of Truth website at -
http://www.banneroftruth.org/pages/articles/article_detail.php?1011

Wednesday, 2 March 2011

ME Petition

All the ME sufferers that I have heard from over the last couple of weeks have been extremely disappointed and concerned regarding the results of the PACE Trial; ME support groups such as the 25% ME Group and the ME Association had previously called for the Trial to be stopped. It was therefore something of a shock when one ME charity, the Association of Young People with ME (AYME), issued a statement welcoming the outcome of the Trial. As a result, a petition has been set up under the following title -

“AYME does not represent the ME community and its actions have now become harmful to ME sufferers”

For further information and to sign the petition, please go to http://www.ipetitions.com/petition/ayme/